Skip to main content

Happy 3 week Birthday Aaron - our little miracle!

Dear Sweet baby boy,
We have had quite enough excitement for awhile! Can we slow down here for a little bit? This week you had 1 "procedure" and 2 surgeries. First, at the beginning of the week you had a Broviac (or central line) placed in you. You were going through IV lines and A-lines pretty quickly because your veins are so tiny, so the Broviac was inserted by the surgeon, Dr. Katz, and it should last you for a lot longer. All week the doctors and nurses were watching what they had diagnosed as NEC very closely and Wednesday one of the worst things had happened, you had "Free-air" which meant surgery...NOW!!! Mommy had just gotten to the hospital when daddy called and said he just spoke to the doctor and you would be having surgery right away. I had the shortest conversation ever with Grandma Pam - I told her "Aaron's having surgery today", she said she was on her way and we hung up. Daddy called Grammy Vicki to tell her what was going on she was on her way as well. When Dr. Katz came she decided to put in a drain rather than do the full surgery and she would be able to see at least some of the intestine to see if it was damaged. Mommy, Daddy, Grandma, Grammy, and Pastor Al waited patienly for the procedure to be over. The Dr. Ritterman came to get mommy and daddy. What they feared was coming true - you did have a perforation and you did have dead intestine - Thursday they would do the full surgery.

Mommy and Daddy we so sad and scared that night - we put out prayer chains and requests EVERYWHERE we could - people prayed so hard that night and on Thursday - your Great Aunt even organized a prayer vigil at her church - we hardly slept. Thursday we got on miracle and we thanked God for everything. Before you surgery you were as healthy as they could have asked for - you recovered nicely from the day before. This time Mommy and Daddy waited with Grandma and Pop, Grammy and Pop-Pop, and Pastor Al. Once they started surgery they realized IT WAS NOT NEC (Praise God!!!). It was an internal hernia in your small intestine - they did have to remove a part of it, and now you have a stoma on the middle of you belly - that's how you will poop for about 6 weeks or so - and then they will go back in once you are over 3 lbs and they will put the two ends together. Today was your first full day of recovery (great 3 week birthday, huh?). You are recovering very nicely - you're just very VERY puffy right now (but, you are still the cutest thing I have EVER seen). Hopefully by the middle of next week you will start eating (very slowly).

Dear, sweet, Aaron - we were so happy yesterday with the good news we got - and we know that you'll be feeling a lot better soon! I can't wait to watch you start eating and growing! Mommy and Daddy will continue to be there for you every single day - as daddy tells you" just keep doing your job"! We love you SO much!

Love, hugs and kisses!
Mommy

Comments

Anonymous said…
Our miracle baby Aaron is blessed to have such a great mom and dad. We do thank God each and every day that Aaron will recover from this and grow to be a haalthy boy. I knew he was determined to have the chance to grow up with such loving, kind parents.
7:12 AM
Anonymous said…
Baby Aaron we were so excited to hear that you are doing well after your surgeries this week. We all pray for you and your mommmy and daddy every day. May God Bless you and keep you so that you can now recover and get healthy enough to come home. You have a very loving extended family who is just waiting to see you, hold you and kiss your sweet little face.

We LOVE you and pray for you all everyday!

Love,
Kyle, Lisa, Drew and Ben
9:08 AM
Post a Comment

Popular posts from this blog

Aaron didn't make it.

About 3 hours ago, Aaron passed away. After speaking with his doctors earlier in the last few weeks, we decided that if at any point they were no longer supporting Aaron's life, but instead preventing him from dying, that we didn't want him to suffer any longer. We reached that point this morning. Aaron had been struggling for life from Day One, and after surgery, and several weeks of fighting, Aaron ran out of strength. He fought hard, but the strain of surgery just proved to be too much for him. I'm sure I'll feel up to posting more information later. I just don't seem to have any energy left in me for relating this at the moment. But I did feel it was important to share this information with all of you who have been keeping tabs on us. Thank you for your concern, your prayers, and your well-wishes during this difficult time. We love you. P.S.: I'd like to leave you with the following lyrics that popped into my head while we held Aaron as he passed away. They ...
47 comments
Read more

Eighteen.

 18, Aaron. Holy shit, kid (calm down, you're 18 in about 5 hours, I can curse in front of you now, plus, I've had a couple drinks, my language is a bit loose). You're an adult. You're old enough to drive, you'd be looking at college or technical school, or backpacking across Europe in a gap year, or whatever weird thing kids are doing when they turn 18 these days. You'd be a person. A complete, fully realized, adult person. That's weird, kid, gotta admit. So, 18 is hitting your mom and I kinda hard. The idea of you at 18 is really blowing our minds. We were just barely not kids ourselves when you were born, and now we're talking about you as an adult. It's amazing to think about. As you well know, we've done a ton of work with, and fundraising for, the March of Dimes; donated money and goods to community health centers; donated craft goods to a local moms and babies' hospital for siblings of newborns; collected toys, pajamas, and games for l...
Post a Comment
Read more

IT WASN'T NEC!

After a long day of sitting at the hospital, hoping for the best, and preparing for the worst, the surgeon came in to talk to us and revealed to us that things went better than anyone could have possibly expected. Aaron never had an infection. What he did have though, was a hernia. He had a loop of intestine trapped beneath another loop, and while it was never "infected," it was trapped and deprived of blood, so it was dead. The surgeon removed the damaged loop, and thankfully, there is plenty more intestine left in there for Aaron. He's recovering peacefully from today's surgery, and was already at 28% oxygen (21% is room air) on the ventilator, and his other stats were all back where they were pre-surgery. He's doing fine. I want to thank everyone for their prayers and well-wishes during this time. I fully believe that Aaron wouldn't have rebounded from yesterday's procedure so quickly, and wouldn't have been as ready for today's if not for those...
25 comments
Read more