Well it was a pretty good weekend for Aaron. Saturday when we got there he was pretty wide awake. He is very puffy right now because he has a lot of fluid pumping through him. He was not peeing yesterday which was contributing to the puffiness. Today they got him peeing again and they think by tomorrow or so they will start getting LESS puffy. Last night Aaron decided to surprise us - we went for a walk and came back to find the doctor and nurse around his bed. Turns out that his Broviac (also known as a central line) was clogged up. We THOUGHT we were going to be getting ready to leave and it turns out they had to call in the surgeon again - that was at 5:00. We had to stay to meet the surgeon and sign the paperwork. He got there a little after 7:00, they got started closer to 8:00 and had it taken care of around 9:00 - WE had not even eaten dinner then. We have learned now to NEVER make plans (our plan was to leave the hospital and be home to eat dinner - which is why we did not have dinner with us). Anyway, he has it in now and he is feeling MUCH better today. Now for the less puffy - and we can't wait for him to start eating!
About 3 hours ago, Aaron passed away. After speaking with his doctors earlier in the last few weeks, we decided that if at any point they were no longer supporting Aaron's life, but instead preventing him from dying, that we didn't want him to suffer any longer. We reached that point this morning. Aaron had been struggling for life from Day One, and after surgery, and several weeks of fighting, Aaron ran out of strength. He fought hard, but the strain of surgery just proved to be too much for him. I'm sure I'll feel up to posting more information later. I just don't seem to have any energy left in me for relating this at the moment. But I did feel it was important to share this information with all of you who have been keeping tabs on us. Thank you for your concern, your prayers, and your well-wishes during this difficult time. We love you. P.S.: I'd like to leave you with the following lyrics that popped into my head while we held Aaron as he passed away. They ...
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Thanks for letting Grandma Pam visit today.
Love you guys!
Josh and Nikki! I can't say in words what I want to say to you both. You are the most incredible people I know. And your little guy is so lucky to have you. I wish you didn't have to deal with any of this but God is on your side and he knows you can do this. Take care and be strong. We love you!