Letter to Aaron - October 3

Dear Aaron,

Hi sweet pea! We are back from Disney and we had a WONDERFUL time. We were a little worried (along with others) about how it would be seeing all the kids etc, but it didn't really bother daddy and I. It was so nice to be away and be doing such fun things! One night while we were there I was lucky enough to have a dream about you and daddy and I being in Disney together. We were having so much fun. Riding rides, watching shows, hearing you giggle, even hearing you cry a little...it was very nice to have that dream. We even took you to meet Mickey. I wish we could have done it for real, but for the time being I will take the dream. Thanks for meeting me there.

Now today, the Phillies start their playoff series with their first game. I have no doubt that daddy would have had me dress you in Phillies gear today. How I would love to see you watch the game with daddy...napping on his lap or just to watch you play in the living room while daddy watched the game. That sure would be adorable. I can remember you being in the NICU and daddy telling you all about the Phillies...so I bet you are a Phillies fan and you'll be cheering them on from heaven. I miss you peanut and I love you!

Hugs, kisses, tickels and giggles,
Mommy

Comments

Anonymous said…

treasure those dreams - Aaron is peaking in on mom and dad to make sure they are OK.

Love, Mom W

8:28 PM

Anonymous said…

I'm so thankful that you dream of Aaron - especially in such a fun place as Disney. He knows just when you need him!

Love you both.

Roxie

11:45 AM

Aaron didn't make it.

About 3 hours ago, Aaron passed away. After speaking with his doctors earlier in the last few weeks, we decided that if at any point they were no longer supporting Aaron's life, but instead preventing him from dying, that we didn't want him to suffer any longer. We reached that point this morning. Aaron had been struggling for life from Day One, and after surgery, and several weeks of fighting, Aaron ran out of strength. He fought hard, but the strain of surgery just proved to be too much for him. I'm sure I'll feel up to posting more information later. I just don't seem to have any energy left in me for relating this at the moment. But I did feel it was important to share this information with all of you who have been keeping tabs on us. Thank you for your concern, your prayers, and your well-wishes during this difficult time. We love you. P.S.: I'd like to leave you with the following lyrics that popped into my head while we held Aaron as he passed away. They ...

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Baby On Your Six

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