Apparently last night's phlegm wad gave everyone involved a bit of comic relief. Tonight, his nurse Heather told me that after all the stress Aaron had them under, when they essentially pulled a nickel sized booger out of his lungs they had to chuckle that THIS was what was causing all the problems. (I don't know about you but a nickel sized phlegm wad coming from MY throat would be gross - imagine it from someone his size). She also said the moment it was out Aaron opened one of his eyes, looked around and started kicking his feet as if to say, "What's going on guys - what was THAT!" She said about an hour later after Aaron forced them to put him back onto the regular ventilator (because he was trying to breathe on his own when he was on a ventilator that is supposed to breathe FOR him), he looked at her like, "What did I do?" Of course these are words that Heather put in his mouth, but often Aaron's nurses and I have conversations and the nurses will talk for Aaron. Today he was more active again and did have his eyes open for a little while at different times off and on. We still hoping for a deluge of pee so that his makes himself a LOT less puffy, but the doctor's and nurses are pleased with how he is doing (even if he looks like his is about to pop). Mommy and Daddy would be a lot happier if he looked a little more like him! Soon enough, I guess. If anything we know Aaron makes (and breaks) all the rules!
About 3 hours ago, Aaron passed away. After speaking with his doctors earlier in the last few weeks, we decided that if at any point they were no longer supporting Aaron's life, but instead preventing him from dying, that we didn't want him to suffer any longer. We reached that point this morning. Aaron had been struggling for life from Day One, and after surgery, and several weeks of fighting, Aaron ran out of strength. He fought hard, but the strain of surgery just proved to be too much for him. I'm sure I'll feel up to posting more information later. I just don't seem to have any energy left in me for relating this at the moment. But I did feel it was important to share this information with all of you who have been keeping tabs on us. Thank you for your concern, your prayers, and your well-wishes during this difficult time. We love you. P.S.: I'd like to leave you with the following lyrics that popped into my head while we held Aaron as he passed away. They
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Love, Grandma Pam
Love,
Great Aunt Roxie
Nikki you are so sweet to be thinking of my little ones when you guys are going through so much. God Bless you all!
My prayers go up for Aaron's fight and for your fortitude. In spite of all this, I can see you still have your sense of humor. Hold on to it. Miss you both.
Still sending out all kinds of ((healthy baby)) vibes to you guys!
Love you both,
Tracey
XOXO